Implementation of a data management program in a pediatric cancer unit in a low income country.

Implementation of a data management program in a pediatric cancer unit in a low income country. Research Abstract Details 

Research Abstract Table of Contents

Jump to the:

Implementation of a data management program in a pediatric cancer unit in a low income country. Abstract Text:

Lisa Ayoub,Ligia ,Armando ,Jose Manuel Sierra,Pablo Cesar Dominguez,Ching-Hon Pui,Yuri Quintana,Alicia Rodriguez,Ronald D Barr,Raul C Ribeiro,Monika L Metzger,Judy A Wilimas,Scott C Howard,

INTRODUCTION: Pediatric cancer units in low-income countries lack data on which to base quality improvement initiatives. We implemented a data management program in the oncology unit of the children's hospital of Tegucigalpa, Honduras, and then we assessed training and supervision of data managers, data accuracy, and completeness as well as obstacles encountered. METHODS: Training included 2 days of off-site hands-on instruction in the use of an online database, daily on-site supervision by physicians, periodic online meetings for education and problem-solving, and continuous e-mail support. RESULTS: Of the 652 patients diagnosed with acute leukemia between July 1995 and June 2005, 150 (23%) had not yet been registered in the database at the time of audit and 65 (10%) had missing medical records. The remaining 437 charts (67%) were reviewed by an external auditor and compared to the data entered previously by the two trained data managers. Protocol information was incomplete in 30% of cases, and the cause of death was inaccurate in 18%. All other data were 99% accurate and 93%-100% complete. Obstacles included a limited medical records system, poor organization of the charts, missing records, inconsistently documented protocol information, data managers who lack a medical background, and slow or unreliable internet connections. CONCLUSION: Data managers can be trained to effectively collect basic pediatric oncology data in a low-income country. Addressing inadequacies in the medical record system while providing specific training in protocol-based care and determination of cause of death for both physicians and data managers will improve data quality.

Implementation of a data management program in a pediatric cancer unit in a low income country. Publishing Authors By Initials

L Ayoub,L ,A ,JM Sierra,PC Dominguez,CH Pui,Y Quintana,A Rodriguez,RD Barr,RC Ribeiro,ML Metzger,JA Wilimas,SC Howard,

For similar investigative techniques: epidemiologic methods: data collection: vital statistics: mortality: survival rate research abstracts see: investigative techniques: epidemiologic methods: data collection: vital statistics: mortality: survival rate research

PUBMED ID PMID:

MEDLINE DATE:

Implementation of a data management program in a pediatric cancer unit in a low income country. Journal Published:

PUBLICATION TYPE: Research Support, Non-U.S. Gov

Journal: Pediatric blood & cancer

VOLUME: 49

Page Numbers: 23-7

Journal Abbreviation:

ISSN: 1545-5009

DAY: 3

MONTH: Jul

YEAR: 2007

Implementation of a data management program in a pediatric cancer unit in a low income country. Information

Number of References:

LANGUAGE: eng

NlmUniqueID: 101186624

Implementation of a data management program in a pediatric cancer unit in a low income country. Keywords Mesh Terms:

KEYWORDS: Survival Rate

MESH TERMS: statistics & numerical data

Chemical & Substance for Abstract: Implementation of a data management program in a pediatric cancer unit in a low income country. Information

Substance Name:

Registry Number:

Grant and Affiliation Information for Implementation of a data management program in a pediatric cancer unit in a low income country.

AFFILIATION: International Outreach Program, St. Jude Children's Research Hospital, Memphis, Tennessee 38105-2794, USA.

Country: United States

AGENCY: United States NCI

GRANT: CA-21765

ACRONYM: CA

MEDLINETA: Pediatr Blood Cancer

REFSOURCE:

DATABASENAME:

ACCESSION NUMBER:

Number Hits: 0

Implementation of a data management program in a pediatric cancer unit in a low income country Related Publications

• A revised classification scheme for acute transfusion reactions.
• A sequence variation scan of the coagulation factor VIII (FVIII) structural gene and associations with plasma FVIII activity levels.
• Age-related differences in implicit learning of subtle third-order sequential structure.
• Aging and the prevalence of cardiovascular disease risk factors in older American Indians: the Strong Heart Study.
• Central pressure more strongly relates to vascular disease and outcome than does brachial pressure: the Strong Heart Study.
• Cognitive impairments and the prevention of homelessness: research and practice review.
• Comparison of treatment outcomes of childhood Hodgkin lymphoma in two US centers and a center in Recife, Brazil.
• Delusional experience of self as receiver of email in schizoaffective disorder.
• Developmental differences in implicit learning of spatial context.
• Do Bach flower remedies have a role to play in pain control? A critical analysis investigating therapeutic value beyond the placebo effect, and the potential of Bach flower remedies as a psychological method of pain relief.
• Evidence for complex interactions of stress-associated regulons in an mprAB deletion mutant of Mycobacterium tuberculosis.
• Examination of lower targets for low-density lipoprotein cholesterol and blood pressure in diabetes--the Stop Atherosclerosis in Native Diabetics Study (SANDS).
• Expression of Hand2 is sufficient for neurogenesis and cell type-specific gene expression in the enteric nervous system.
• Hearing suppression induced by electrical stimulation of human auditory cortex.
• Identification of the RLBP1 gene promoter.
• Implementation of a data management program in a pediatric cancer unit in a low income country.
• Implicit probabilistic sequence learning is independent of explicit awareness.
• Implicit sequence learning without motor sequencing in young and old adults.
• Intrapartum and postpartum analgesia for women maintained on methadone during pregnancy.
• Is inhalant use a risk factor for heroin and injection drug use among adolescents in the United States?
• Matrix metalloproteinase-2 expression by vascular smooth muscle cells is mediated by both stimulatory and inhibitory signals in response to growth factors.
• Molecular identification of blood-meal sources in Culiseta melanura and Culiseta morsitans from an endemic focus of eastern equine encephalitis virus in New York.
• Personal digital assistants are comparable to traditional diaries for dietary self-monitoring during a weight loss program.
• Psychiatric disorders in inhalant users: results from The National Epidemiologic Survey on Alcohol and Related Conditions.
• Reducing waiting times: a whole department approach.
• Smooth muscle trans-membrane sarcoglycan complex in partial bladder outlet obstruction.
• Spindle oscillations during asymmetric cell division require a threshold number of active cortical force generators.
• The "Hispanic paradox": an investigation of racial disparity in pregnancy outcomes at a tertiary care medical center.
• The expectancies of living kidney donors: do they differ as a function of relational status and gender?
• Traditionality and cancer screening practices among American Indian women in Vermont.