Assessing parental attitudes toward genetic testing for childhood hearing loss: before and after genetic consultation.

Assessing parental attitudes toward genetic testing for childhood hearing loss: before and after genetic consultation. Research Abstract Details 

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Assessing parental attitudes toward genetic testing for childhood hearing loss: before and after genetic consultation. Abstract Text:

Yuelin Li,Annie G Steinberg,Lisa Bain,Dinah Yaeger,Ari Bieler,Rachel Ewing,Girija Kaimal,Ian Krantz,

We report on the development of a Genetic Attitude Assessment Tool (GAAT) to measure parental attitudes in contemplating genetic testing for childhood hearing loss, and to examine the differences in assessments made before and after genetic counseling. The GAAT tool was administered to a convenient sample of 119 parents of children with bilateral sensorineural hearing loss. The respondents completed the survey either before (n = 77) or after (n = 42) genetic counseling. Exploratory Factor Analysis was applied to identify and quantify the underlying psychosocial structure. Our results showed the validated 54-item GAAT instrument contains six subscales: (1) "test intention," (2) "beliefs in non-genetic causes of hearing loss," (3) "deferral of decision to undergo genetic testing," (4) "appropriate use of genetic testing results," (5) "beliefs in the benefits," and (6) "concerns about stigma." The respondents who answered the survey after genetic counseling had higher "test intention" (P = 0.017) and endorsed to a greater extent "beliefs in the benefits" (P < 0.001). They believed to a lesser extent that childhood hearing loss was due to "non-genetic causes" (P < 0.001) and were less inclined to prefer "decision deferral" (P = 0.031). Respondents who themselves had a hearing loss expressed a significantly weaker belief in "non-genetic causes" of hearing loss (P < 0.0001). In conclusion the validated GAAT instrument is responsive to changes in parental attitudes after genetic counseling. The GAAT may be used to monitor parental attitudes serially, to further understand how parental attitudes change from pre genetic counseling, post genetic counseling, to post test result disclosure.

Assessing parental attitudes toward genetic testing for childhood hearing loss: before and after genetic consultation. Publishing Authors By Initials

Y Li,AG Steinberg,L Bain,D Yaeger,A Bieler,R Ewing,G Kaimal,I Krantz,

For similar natural sciences: time: time factors research abstracts see: natural sciences: time: time factors research

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Assessing parental attitudes toward genetic testing for childhood hearing loss: before and after genetic consultation. Journal Published:

PUBLICATION TYPE: Research Support, N.I.H., Extr

Journal: American journal of medical genetics. Part A

VOLUME: 143

Page Numbers: 1546-53

Journal Abbreviation: Am. J. Med. Genet. A

ISSN: 1552-4825

DAY: 15

MONTH: Jul

YEAR: 2007

Assessing parental attitudes toward genetic testing for childhood hearing loss: before and after genetic consultation. Information

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LANGUAGE: eng

NlmUniqueID: 101235741

Assessing parental attitudes toward genetic testing for childhood hearing loss: before and after genetic consultation. Keywords Mesh Terms:

KEYWORDS: Time Factors

MESH TERMS: psychology

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Grant and Affiliation Information for Assessing parental attitudes toward genetic testing for childhood hearing loss: before and after genetic consultation.

AFFILIATION: Department of Psychiatry and Behavioral Sciences, Memorial Sloan-Kettering Cancer Center, New York, NY 10022, USA. liy12@mskcc.org

Country: United States

AGENCY: United States NIDCD

GRANT: R03-DC-04486

ACRONYM: DC

MEDLINETA: Am J Med Genet A

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