SCAR 7 - genetic disease - any info please
I am new to this so apologies if i am posting in the wrong place.
My baby cousin (a boy aged 6 months) has a genetic complication that we believe is called SCAR7. He is currently quite ill in hospital. We have done a bit of research and found that stem cell treatment can work. We have been told that only 7 other people in the world have this condition and he will not live past 2 years old??
Apparently there is some stem cell treatment in China? Does anyone know?
Has anyone done any research on this or could anyone give us further information?
We are desperate to know further information and are willing to help him in any way we can.
If anyone has any information please post or message me.
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